New Theory On Multiple Sclerosis Treatment Hits Home
Saskatchewan MS Sufferers Respond to Recent Announcement
An Italian doctor's new theory for the treatment of Multiple Sclerosis has got a lot of MS sufferers in Saskatchewan talking.
Dr. Paolo Zamboni believes MS is actually a vascular disease that can be treated by surgically opening up blocked veins, which he calls "the liberation treatment."
The MS society of Canada is now accepting proposals for research funding on Zamboni's theory, but Lindsay Bryson with the MS Society for Saskatchewan told Newstalk Radio although the idea is exciting, people shouldn't get their hopes up just yet. "I just want to make sure that people are cautious and that they know that this is just one study, and that there will be stuides to come and more information as well."
Even so, some people are more optimistic about the theory and proposed treatment. Jacqui Siverston has Multiple Sclerosis and is confident that the treatment is the real deal. "Dr. Zamboni used it on his own wife and it worked. So this sounds more promising than anything else I've heard come through."
The MS Society of Canada advises that people with MS continue taking their medication until more details on the study have been released.
Comments
Actually dozens have been
Actually dozens have been successfully treated according to the news story aired on CTV. The drug companies are in a panic, a vascular disease with simple surgical methods to cure as opposed to a neurological disease requiring drugs to treat symptoms. Where's the profit in that? My guess is the pharmaceutical companies had an idea of this vascular cause long ago, but curing is not their gig.
New Theory On Multiple Sclerosis Treatment Hits Home
First of all many thousands and probably tens of thousands of MS patients aren't participating in any MS treatment program and the only medication they take is what they need to survive the horrendous symptoms MS inflicts on them each day. The MS Society's statement misleads the public into thinking that all MS patient is on some kind of miraculous "medication" - they are NOT! Secondly, this statement is not only demoralizing for MS sufferers but it undermines the Society's fund raising activities by implying that everyone is receiving treatment that is somehow equivalent to the results that Dr. Zamboni has demonstrated. I have worked as a volunteer at the chapter and provincial level and have personally raised tens of thousands of dollars for the MS Society. The truth about the disease and the reality concerning the lack of treatment options are the best thing we have going for us when it comes to raising money and public support. People will be far less willing to donate if they are under the false assumption that the disease is under control with "medication".
Rather than start a whole bunch of new studies the MS Society should send a team of their best neurologists to Italy to review Dr. Zamboni's methods. If they find everything he says to be true, they should come back here and set up the treatment program - Not more studies.
response
You NAILED it!! No more studies. North American docs may be upset they didn't think of this themselves. But the time for action is now. Let's get relief to people like my husband who has suffered with this condition for over 25 years.
Follow the Money!
The MS Society of Canada probably receives millions from the drug companies, and are now addicted to the money.
imagine.... how many high paid execs who'd be out of work if a simple MRI/CAT scan or even an ultrasound could diagnose a problem.
But, thankfully for the MS SofC... here in Sk... it'll be years before even a study is done... and forget about your local doctor offering the MRI/CAT/US for diagnoses!
shame....
"receives millions"
Rather than make libelous statements, prove what you just wrote. Try finding some proof before making accusations of a charity that has supported someone with MS like me.
my two cents
I don't think the MS Society's statement that MS patients should stay on their current medications until more is known about the Liberation treatment is intended to mislead the public into thinking that all MS patients are on some kind of miraculous "medication", as Mr. Young implies. They are simply encouraging MS patients not to abandon whichever approved MS DMDs (disease modifying drugs) they may be currently taking, as these drugs, although no cure, have proven effective (to varying degrees) in slowing down disease progression, at least in RR MS. Nothing sinister about that.
That said, I think Mr. Young's last paragraph presents a suggestion that is the smartest, most practical, and most expedient move the MS Society could make regarding this matter. As someone with MS, I also am extremely anxious for definitive action to be taken on this NOW, not after several studies likely involving several years and hundreds of thousands of dollars, to say the least. Think of how much more suffering and irreparable damage will take place in the interim. Let's cut to the chase & get a MOVE ON NOW!
I have a friend with MS who
I have a friend with MS who is thinking about going off her medications. She has secondary progressive. I'm sure she's not the only one thinking this and whether its MS meds or other meds, you should see your doctor before going off your prescribed treatments.
There is no better way of
There is no better way of saying what I also feel. So lets get her done.
there is no doubt that my
there is no doubt that my hopes on this proposed cure is up. searching for a cure is not option.. its a must that is needed long a go to stop the suffering of the many afftected with this disease. I am actully still searching for information to get an opprotunity to participate in the "liberation treatment"
Well, of course patients
Well, of course patients should keep taking their meds until this treatment comes on line. But it looks like the cure is a simple MRI scan followed by arthroscopic surgery, meaning new MS patients could be cured in almost as much time as it takes House to prove Cuddy wrong, with as simple a treatment. This SHOULD get people's hopes up, and with such a low risk proceedure, Health Canada should fast track approval. Think of the $billions we could redirect to Parkinson's, Huntington's, and Altzhiemer's, reasearch. This might even be the solution for other degenerative diseaeses.
This discovery could well rank up there with vaccination, penicillan, insulin, and organ transplants.
CCSVI
My comment is I wonder what the Cameco Neuroscience Research Centre is doing with regard to this whole idea. They were touted as THE centre of MS research in Canda a few years ago. But now ..not a word or a statement from their president. Why the silence? I say lets get a study set up in Saskatchewan. We have over 2500 MS patients reight here, an it would be a lot less difficult than travelling to Buffalo (if you were to get "chosen") lets get the Dopler sonograph performed on all MS patients and let get moving...!!!
My wife has been on
My wife has been on medication for her m.s. for 7 years. The cost of these drugs were about $200,000 . Yes you read right. Neither me or my wife feel that these drugs have helped and now she is not taking any medication. I think the biggest obstacle to Dr. Zambonis treatment being accepted in Canada will be the Drug Companies, one of the most powerful forces in the world.
MS Wife and drugs
It is very simple guys and it was said in a few of these comments. We all know how many cures are already out there but hasn't been published because of pharmaceutical companies and how they will lose tons of money. Just imagine how many people will lose their jobs and how much money hospital and drug companies would lose. I believe with all my heart that many cures are out there and we are being denied them. I have RA (Rheumatoid Arthritis since I was 16 years of age and my wife has MS since 16 years of age as well. I think this is more then promissing. This is it folks. Let's just hope it is coming this way very soon.